Today is (was?) International ME/CFS Awareness Day, and the Sock It 2 ME/CFS project is officially launched. Hoping to do for ME/CFS sufferers, research budgets and families what the AIDS quilt did for HIV, the “sock project” has the potential to open a lot of eyes.
Some quick info from the site:
What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome, as it’s known in the US, is a debilitating disease which has been classified by the World Health Organization (WHO) as an organic, infectious neuro-immune disorder since 1969. It can occur in both epidemic and sporadic forms; over 60 outbreaks of ME/CFS have been recorded worldwide since 1934.
- causes more functional impairment than diabetes, heart failure or kidney disease.
- creates a level of disability comparable to MS, chemotherapy or the final stages of AIDS.
- strikes an estimated 17 to 20 million worldwide, impairing function and shortening lives.
- like AIDS in the early days, gets inadequate funding due to widespread misunderstanding.
has only recently gained notice in blood banks internationally as an infectious disease concern.